Dr. Morris from “How to Die in Oregon”

.
Dr. Morris care of NW Surgical Oncology
Dr. Morris care of NW Surgical Oncology

Dr. Katherine Morris was Cody Curtis’ surgical oncologist. They were both featured in the groundbreaking documentary, How to Die in Oregon. Dr. Morris is currently an Assistant Professor in Surgical Oncology at University of New Mexico, with clinical and research interests in Upper GI (stomach, liver, pancreas, etc) cancers.

I’m not a person who likes getting her picture taken. So, how I ended up in a documentary discussing the most difficult and emotionally laden decision I’ve ever made in my professional career still occasionally puzzles me. Voting for Oregon’s Death with Dignity law was a clear decision for me given the amount of respect I have for individual autonomy, and through my practice I’d learned how much people can suffer at the end of their lives. Even so, the decision to be a prescribing physician for a patient I was very attached to was incredibly difficult.

I had struggled through that decision process with the help of my family and friends when my patient introduced the idea of a documentary she was participating in about the process. She brought it up gently, saying, “Well…I’m being filmed and interviewed for a movie that is being made on the Death with Dignity law. The documentarian is a very nice young man—very respectful. He’s from Oregon, and his first film made it into Sundance! I’m sure he would love to have you bat your eyelashes for the camera…” (This last being a bit of an inside joke between two feminists.)

“Wow…I don’t know about that. I’m still reeling from this myself.”

“No problem—whatever is good for you—I can keep you entirely anonymous if you like. Would you like to just chat with him on the phone or by email? I can give him your contact info if you’re OK with that.”

“Interesting,” my heart thought.

“Hell no!” My brain thought.

“OK,” my mouth said.

I could’ve remained anonymous. No one would have ever known I was her prescribing doctor. The anonymity was attractive. The movie, however, was very important to my patient. She wanted the story to be told. I thought a considerable amount of time about participating and finally decided I could do a voice interview. We recorded for about two hours in May, when Cody was doing exceptionally well and I still had hopes she wouldn’t need the medication. This little bit of denial allowed me to think more clinically about the subject—it was easier to show the CT and PET scans and discuss the disease process and her clinical course. It was like I was explaining it to a family member of a patient, except this family member had what looked like a 35 pound camera on his shoulder, using it for sound recording only.

The next step down the path was filming her office visits when she came in for drain checks and assured me she was feeling as well as possible. Cody was the focus of these, and it seemed so important to her. I liked the documentary maker, Peter, and it was somewhat natural. I generally forgot he was there given the intensity of our discussions, except for the time I told the tale of my first time hosting Thanksgiving with my Mom and the in-laws while troubleshooting her drain. After sharing somewhat pointed humor about myself, my husband, the references to f-bombs, overly salted gravy, and disagreements between family members, I suddenly remembered the camera and blurted out, “this part better not land in the film.”

In the clinic appointments I was doing my job as a surgical oncologist—trying to help and support Cody and her family—so, it was much easier to be filmed. I still hadn’t committed to an actual on camera interview about my feelings on the subject. They were—and quite frankly, often still are—raw. I was very conscious of how little I knew from the philosophic and rigorous ethics standpoint. I hadn’t spent a lifetime focusing entirely on these issues like many people before me. I felt inadequate to talk about it, and I wasn’t inclined to show as much of my underbelly as it would take to discuss this in front of strangers who’d see the film.

By the time December arrived, Cody went into rapid decline. She decided to take the medications, dying at home, with her family around her, the icy wind and a large digital camera outside her room. Her and her family were beautiful in their love for each other. I was present when she took the medication and honored to be a part of her life. When she had drifted off to sleep, I drove home and hugged my cat, finally able to really cry about it. That was a Monday.

The following Saturday night my husband and I were watching the public access station. We’d only just started a cable subscription when TV went digital because the TV didn’t work without cable. Not wanting more excuses to sit on our backsides in front of the TV than we already had, we got the cheapest plan, leaving us with the major networks, PBS, three Spanish telenovela channels, and public access. Even with that meager selection, we were still sitting on our backsides in the living room. Channel flipping brought us to the Women’s Hour show, wherein a local religious lady had a couches and mugs format talk show with important people in her community. That Saturday, it happened to be one of my former medical school professors. A devout Catholic, very much in the full Roman tradition, this professor had caused controversy during my medical school days because he wasn’t willing to prescribe birth control.

He was discussing how sick our society was that it allowed a “very small group of doctors” to go around “making their living off prescribing lethal medications to vulnerable, suicidal patients.” The comments went on, and seemed to me increasingly hostile and entirely divorced from the process I’d just gone through with my patient. Although I had tears streaming down my face, I was angry. Fire spittin’ mad. My husband changed the channel, but I raged on. At that moment, I realized it was critical to tell my side of this story as well, even if it meant tearing up on camera, looking like Austen Powers in a wig.

Peter came over to our house a few days later, and we did my on camera interview, doing our best to not let the swirling cats make too much noise during the recording. I was a bit excited and moderately terrified when the movie came out and I learned HBO had picked it up. I worried about what my friends who disagreed with me on this subject would think. I worried about my patients, past, present, and future, whose religion so sustained them that I feared they wouldn’t feel comfortable with me after viewing the film. I recalled all too well the period of time when members of our OB/Gyn department were having their names and home addresses listed on the internet as people who “needed to be crossed out.” Mostly, however, I was scared of being misunderstood; terrified people would mistake my desire to honor a patient’s decision with a disrespect for the force of life I spent so many hours of my life trying to support.

When I saw the rough cut of the film and heard Nancy Niedzielski’s story for the first time, I knew I’d made the right decision. Her bravery was so huge and heroic compared to my fears that I took courage from it and became a little bit proud of not silencing myself—even if I couldn’t be perfectly composed and eloquent about speaking my mind.

Since then, I’ve seen the film many times, generally through tears. Cody is so alive in the movie and I miss her. In addition to the sadness, however, is the growing knowledge of how eloquently she crafted her message, turning her part in the documentary into a kind of love letter to the planet and people she was leaving.

View full post on Death with Dignity National Center



Nancy Niedzielski from “How to Die in Oregon”

Nancy Niedzielski worked tirelessly in Washington to advocate for the state’s Death with Dignity Act which voters approved in 2008. Her efforts were documented in the groundbreaking documentary How to Die in Oregon which was honored at film festivals all over the world and was recently nominated for an Emmy Award. Documentary award winners will be announced October 1, 2012.

When it was announced the documentary How To Die In Oregon was nominated for an Emmy, memories of the Washington campaign to pass the second Death with Dignity law, flooded my mind. The documentary placed a bookmark at a historical event for people around the world to see. And see it they did with an outpouring of love and support for those who dedicate time and money to ensure terminally-ill patients have a choice in their dying pain. Film Festivals around the world honored the documentary with awards, which for my way of thinking, honors the patients. My husband suffered in his dying, and the Oregon Death With Dignity Act couldn’t help him.

I first met filmmaker Peter Richardson during our Washington state campaign. He heard about my husband who had the opposite experience of others featured in his documentary. At 55, Randy was diagnosed with brain cancer that metastasized to his spinal cord and nervous system. Randy had some decent years but his death was long, ugly, and painful. When Randy entered hospice, only Oregon had a Death with Dignity Law. He was desperately envious of Oregon’s law. Being a member of a Brain Tumor Support Group, we knew the kind of death he would endure as we watched those we loved die horribly.

With no option but to suffer an agonizing death, Randy begged me to change what he felt was a cruel system under which the government insisted terminally-ill patients had to suffer and couldn’t seek assistance in dying. Randy asked me to promise I would change the law in Washington so terminally-ill patients had a choice—one he didn’t get. I promised him. But how? You promise anything to someone you adore as they lay dying.

After Randy’s death, I agonized about that promise. I searched for a way to fulfill it. In that search I came across the non-profit organization, Compassion and Choices of Washington. I was led down a campaign path that provided the opportunity to keep my promise to Randy. It became my full time commitment. I was willing to do anything and everything to keep that final promise to Randy.

On that journey, I marveled that just as it takes a village to raise children well, so also does it take a village to pass a Death with Dignity Law. I met hundreds of donors dedicating money so terminally-ill patients would have a choice in their dying pain. It takes a lot of money to educate the public about a new law and counteract lies perpetuated by the opposition. I met hundreds of volunteers committing countless hours in memory of a loved one or ones who just felt this was the compassionate thing to do for those who share your village. I met thousands of voters who understood this law doesn’t force any belief on anyone. No one has to use it. It just offers another medical option.

When I first watched How To Die In Oregon with Peter Richardson in the safety net of my home, my reaction was one of both sorrow and anger. I felt sorrow for those in the film who, like me, grieved a loved one. Alongside that sorrow sat anger that Randy suffered in a way the patients in the film didn’t. The peace and comfort they experienced in the final days leading up to death because they had a choice was something Randy craved and begged to have. I mentioned the anger to a friend who responded, “That’s why you worked so hard to pass the Death with Dignity law. Now, no terminally-ill patient in Washington will have to suffer like Randy did.” My anger melted away as a promise kept was recognized.

At a showing of the film, I met a man whose wife used the Washington Law. He expressed gratitude for her peaceful death. How odd it was to hear the words gratitude and death together. He said the law was a legacy to Randy. Knowing that because of the law, his wife’s death left him with less haunting memories than Randy’s did for me, I felt comforted. Randy was kind, gentle and caring. He would be the first to say if his suffering in dying meant others had a choice he didn’t get, then it was worth it. None of us know for certain what our death will be like or whether we’d want to use this end-of-life option. One thing I do know for certain: I want a choice.

As I write this, I’m on a plane to the funeral of Randy’s sister-in-law. She died too young of cancer. Fortunately her suffering was managed by hospice; for that I’m grateful. Randy wasn’t as fortunate. Not all dying pain is manageable. There is no guarantee any of us will leave this world peacefully, free of pain, surrounded by loved ones. This law brings terminally-ill patients closer to that possibility.

The intimacy with which the documentary shows why patients choose this option is told better than I ever can. I will always be grateful to filmmaker Peter Richardson and editor Greg Snider for their respectful approach. They educated the world on why advances in medicine that keep people alive longer need to be balanced with the choice to end one’s pain in dying. The Oregon and Washington Death with Dignity Acts change the deaths of terminally-ill patients and in so doing change their lives and the lives of their families for the good. I will always be grateful for being able to meet so many wonderful people who work tirelessly for others so they have this choice. They have changed my life for the good.

View full post on Death with Dignity National Center

Tad Friend reads from his memoir “Cheerful Money”

to hear more, go to: writing.upenn.edu Tad Friend reads from his memoir “Cheerful Money: Me, My Family, and the Last Days of Wasp Splendor” at the Kelly Writers House on January 20, 2010. Tad Friend is the author of the memoir Cheerful Money: Me, My Family, and the Last Days of Wasp Splendor (2009, Little, Brown and Company), which came out in September, and Lost in Mongolia: Travels in Hollywood and Other Foreign Lands (2001, AtRandom), a collection of his articles. He has been a staff writer at The New Yorker since 1998, and writes the magazine’s “Letter from California.” Mr Friend’s recent pieces have included articles about Hollywood’s marketing tricks, the electric-car and rocket-ship entrepreneur Elon Musk, the man in charge of executions at San Quentin, and the man who hopes to introduce “green burial” to American cemeteries. He has also written profiles of William Morris agent David Wirtschafter, screenwriter Ron Bass, and San Francisco mayor Gavin Newsom. His article on suicides at the Golden Gate Bridge, “Jumpers,” inspired the song “Jumpers” by the band Sleater-Kinney, and was turned into a documentary film, “The Bridge.” His work has also appeared in The Best American Travel Writing, The Best American Sports Writing, and The Best American Crime Reporting. Mr. Friend is married to the New York Times food columnist Amanda Hesser. They live in Brooklyn with their young twins.

Burying Mother, with a last word from Brenda.

A natural burial for my mother, in a field. I dug the grave myself. And there’s a last word, and a song, from Brenda Nutt, who helped care for my mother Doris in her fading years.

Biodegradable Coffins Made From Recycled Paper Pulp

Coffin Model, Dancof, Biodegradable, Green Design, Coffin, Funeral

Even though Halloween is over, here is one super sustainable design solution that is bound to keep the green spirits happy for the rest of the year. Direct from Denmark, Bendt Stov recently launched DanCof, an innovative range of eco-coffins and urns that have been molded from biodegradable, long fiber recycled paper (PULP). Taking good habits beyond the grave, Bendt Stov’s innovative coffins will allow the environmentally conscious to carry their green credentials into the afterlife.

Urn, Designs, Denmark, Green, Materials, Eco, Funeral
Coffin Model, Dancof, Biodegradable, Green Design, Denmark, Funeral
coffin, model, denmark, danish, design, funeral, green, materials, biodegradable
Dancof, Coffine, Biodegradable, Green, Materials, Funeral, Denmakr, Danish, Design


Read the rest of Biodegradable Coffins Made From Recycled Paper Pulp



Permalink |
Add to
del.icio.us |
digg


Post tags: , , , , , , , , , ,

View full post on Inhabitat – Sustainable Design Innovation, Eco Architecture, Green Building » Eco funeral